University Of Pittsburgh
Myositis Patient Centered Tele-Research (My PACER)
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Welcome to the My Pacer study
A University of Pittsburgh study
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About My Pacer
My Pacer is the first global online registry for people living with myositis. Your experience helps researchers learn how myositis affects daily life for patients like you.
You can join and participate in the My Pacer study using a mobile phone from the comfort of your home, anywhere in the world.
In this study there are no clinic visits or experimental drugs, you will be asked to complete surveys about your health
every six months
.
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Every six months, you’ll take time completing a short health survey. Tell us about your symptoms, activity levels, and how you’re feeling.
There’s absolutely no cost to join, and nothing is billed to your insurance. My Pacer relies on your voice—nothing more.
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Why are we doing this study?
Improve Myositis Measurements:
Help us develop simple, reliable tools that capture how you feel and function.
Speed Up Myositis Research:
Guide Research to Discover Better Treatment Options.
Global Insights into Myositis :
Show us how myositis affects people around the world, so we can make care more inclusive.
How My Pacer Works
Join Easily:
Sign up from home using our secure app or website—no travel needed.
Share Your Story:
Every six months, fill out surveys about your health and symptoms.
Anywhere, Anytime:
Participate from any country, on your schedule
Who is running this study?
This study is conducted by the
University of Pittsburgh
, Pittsburgh, USA
Investigators:
Principal Investigator:
Rohit Aggarwal, MD, MS
Myositis doctors across the globe who want to develop better understanding and treatments for myositis.
All activities of the study have been reviewed and approved by the Institutional Review Board at the University of Pittsburgh. The information you provide will be coded and secured in the University of Pittsburgh secure database for research.
How to Join the MyPacer Study
Step 1:
Click
'Join study'
and complete the short form for eligibility and consent.
Step 2:
Download the study app "MyCap App" on your mobile
Step 3:
Link the MyPacer Study to the MyCap app
Copyright © My Pacer 2025