University Of Pittsburgh
Myositis Patient Centered Tele-Research (My PACER)
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Study Guide
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Welcome to the My Pacer study
A University of Pittsburgh study
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About My Pacer
My Pacer is the first global online registry for people living with myositis. Your experience helps researchers understand how myositis affects daily life of patients like you.
You can join and participate in the My Pacer study using a mobile phone from the comfort of your home—anywhere in the world.
There are no clinic visits or experimental drugs in this study. You will be asked to complete surveys about your health every six months.
Why are we doing this study?
Improve Myositis Assessment:
Help us develop simple, reliable tools that better capture how you feel and function.
Speed Up Myositis Research:
Guide research to focus on outcomes that affect your day-to-day life.
Gain Global Insights into Myositis:
Show us how myositis affects people worldwide so we can make care more inclusive.
How My Pacer Works
Join Easily:
Sign up from home using our secure website—no travel needed.
Share Your Story:
Every six months, complete surveys about your health and symptoms on secure study mobile app.
Anywhere, Anytime:
Participate from anywhere at any time, from on your home.
Who is running this study?
This study is conducted by the
University of Pittsburgh
, Pittsburgh, USA
Investigators:
Principal Investigator:
Rohit Aggarwal, MD, MS
Myositis specialists across the globe working to improve understanding and treatment of myositis.
All study activities have been reviewed and approved by the University of Pittsburgh Institutional Review Board. The information you provide will be coded and securely stored in the University of Pittsburgh's secure research database.
How to Join the MyPacer Study
Step 1:
Click
'Join study'
and complete the short form for eligibility and consent.
Step 2:
Download the study app "MyCap App" on your mobile
Step 3:
Link the MyPacer Study to the MyCap app
Copyright © My Pacer 2025