My Pacer Logo

Welcome to the My Pacer study

A University of Pittsburgh study sponsored by the National Institutes of Health (NIH)

A message from the Study Investigator

About My Pacer

My Pacer is an NIH sponsored study on myositis being conducted at the University of Pittsburgh and Cedars Sinai Medical Center.

We are enrolling adult patients living in the US with a diagnosis of polymyositis, dermatomyositis and necrotizing myopathy.

Study participation can be done from your home or anywhere else, using the My Pacer study app or website. Currently, the study is only available in English.

It is an observational study. No clinic visits or experimental drugs are required.

During this six-month observational study, you will be asked to complete monthly questionnaires and simple tests at home, wear a Fitbit (provided by the study) and have two secure telemedicine (audio-video) visits with one of the study doctors.

Study questionnaires and tasks will take about 30-40 minutes per month, with an additional 15-30 minutes for telemedicine visits at baseline and 6 months.

There is no cost to you or your insurance. Compensation of $75 is provided upon study completion.

Why are we doing this study?

We believe that the My Pacer study will accelerate myositis research and lead to better clinical trials in myositis. We want to make research easy and convenient for the patients.

The primary goal of our study is to reach a broader range of myositis patients across the country through tele-medicine research. Using technology, we hope to overcome geographic barriers and ultimately allow patients to participate in clinical studies from the convenience of their home. We will compare these new research methods to a more traditional approach, where patients have to travel to their doctor’s office for a research study.

The secondary goal of the study is to evaluate physical activity monitors, e.g., Fitbit, as a tool to objectively measure for physical function in myositis, along with a physical function questionnaire to better understand the patient’s perspective on their daily activity. There is a need for better tools to assess treatment response from the patient’s perspective (patient reported outcome) as well as to objectively measure improvement in a patient’s physical function in myositis.

How My Pacer Works

First you will answer some eligibility questions, followed by consent and release of medical records, and finally register for the study. Our study doctor will review your information and decide if you are accepted in the study. You will be notified by email whether you are accepted or not. If you are accepted, you will be given a username and password to login and begin your study tasks.

The study will run for a total of six months. Each month you will have to do questionnaires, functional tests and wear a Fitbit (provided by the study). You will also participate in two telemedicine visits.


We will ask you a series of questions about different aspects of your disease, daily activities and your medication usage.

Physical Functional Tests

You will complete some easy functional tests that can be done at home. The tests involve getting up and down from a chair and walking a short distance.

Fitbit Activity Monitor

Once you are accepted into the study, we will send you a Fitbit. We will ask you to wear it one week every month for six months. This allows for accurate measurement of your daily activities.

Telemedicine Visit

The study doctors will have a secure video chat with you at the beginning of the study and then once more at the end of the study (6 months later). It will allow them to check up on you, answer any questions you might have and further understand your disease.

Who is running this study?

This study is being run through the University of Pittsburgh and Cedars-Sinai Medical Center/Attune Health. The sponsor of this study is the National Institutes of Health (NIH) All procedures in this study have been reviewed by the Institutional Review Board at the University of Pittsburgh. Your coded data is secured in a University of Pittsburgh database

University of Pittsburgh Investigators:

Rohit Aggarwal, MD, MS
Chester V. Oddis, MD
Siamak Moghadam-Kia, MD
Research Coordinator: Nicole Neiman

Cedars-Sinai Medical Center/Attune Health

Swamy Venuturupalli, MD
Daphne Scaramangas-Plumley, MD
Shalini Mahajan, MD
Research Coordinator: Nikhil Davuluri

Join Study

By downloading the My Pacer app on your mobile device

Get It On Google Play Logo Download on the App Store

If you would like to participate in this study through the website, click here.