A message from the Study Investigator

Why are we doing this study?

We believe that the My Pacer study will accelerate myositis research and lead to better clinical trials in myositis. We want to make research easy and convenient for the patients.

The primary goal of our study is to reach a broader range of myositis patients across the country through tele-medicine research. Using technology, we hope to overcome geographic barriers and ultimately allow patients to participate in clinical studies from the convenience of their home. We will compare these new research methods to a more traditional approach, where patients have to travel to their doctor’s office for a research study.

The secondary goal of the study is to evaluate physical activity monitors, e.g., Fitbit, as a tool to objectively measure for physical function in myositis, along with a physical function questionnaire to better understand the patient’s perspective on their daily activity. There is a need for better tools to assess treatment response from the patient’s perspective (patient reported outcome) as well as to objectively measure improvement in a patient’s physical function in myositis.

Who is running this study?

This study is being run through the University of Pittsburgh and Cedars-Sinai Medical Center/Attune Health. The sponsor of this study is the National Institutes of Health (NIH) All procedures in this study have been reviewed by the Institutional Review Board at the University of Pittsburgh. Your coded data is secured in a University of Pittsburgh database